- Nov 10, 2002
- 9,206
- 3,792
- 113
- 72
- State / Prov
- Ontario
I don't ask for much....I've come to respect and admire each of you individually, yet, someone, as a "family", collectively, you have demonstrated a great ability to send powerful, all encompassing, and focused empathy, to help each other out!!
I ask this of you.......I'm so very empty, I write this with tears, something coming from a guy that's faced, and experienced death first hand, and have been able to prevent it for others....
I'm shaking terribly, this is kinda hard, it's much to ask of you.......
Just got a call from my daughter, whom, along with the rest of us, have been holding a sort of "hurrah" vigil, at my son in law's bedside at Toronto Western General, 24 hours a day, a family member is taking turns being with Shawn, who, just a couple, or 3 weeks ago, shared the wonderful beach wedding of our oldest son, in Mexico..it was like a paradise of emotions and relaxation come true...all at the same time, all for the right reasons, all the family, and some very close friends attending.
It was the high, that I thought we'd never really have to come down from......it was that nice, it was that special.
Last week, Shawn (Jaxon's dad) lapsed into a brain induced emergency lift from Bowmanville, where they live, to Toronto...apparently THE hospital that knows what to do with these "demons" (as Shawn expresses it), which are un-affectionately know as Cavernomas
http://brainavm.oci.utoronto.ca/malformations/Cavernomas_index.htm
We truly thought that our grandson Jaxon, inherited the genome, from his dad, and that it would help explain some of his shortfalls in development, though, it would seems, with fingers crossed, Jaxon is just one of those kids that WON'T walk before he's 2 years old, but weekly therapy has made him a different little kid, a pretty amazing and capable little boy, with a vocabulary seemingly beyond some adults...he does have chromosome deficiencies, that WERE indeed passed down by both his parents, Shawn, and my daughter Nikki, so, it seems we need to wait, and work hard!!
Nikki called a few minutes ago...she was shaking right through the phone, when she said to please be prepared to bring Jaxon to see his dad, on a moments notice, as early as tomorrow morning, if current conditions continue to deteriorate....after 2 MRI's and emergency consults, it has been determined, that a sudden cavernoma had developed, in the last 2 weeks, at the base of his brain, behind the spinal cord, right where the cord attaches to the brain, and it needed to be removed, as it has refused to stop bleeding, and putting massive pressure on this part of his brain. has caused him a delusional state, eyes closed, even a whisper tormenting him like smashing cymbals.
They've tried all the non-radical and non-invasive treatments...nothing is working...it's going to be a life threatening emergency anywhere between tonite, and wednesday, when Shawn's be scheduled for an operation, that could end his life, literally......only 6 out of 51 such procedure have been successful..anywhere.
Nikki, between sobs, asked that we be prepared to bring Jaxon to see his dad, on a moment's notice, to perhaps say goodbye, and "I LOVE YOU" one last time, which I refuse to believe, and accept.
Shawn is the kind of dad, that ANY KID, would be proud to have as a dad, and I'm proud of his achievments, and his grit determination, and he's the kind of young man, that I'm easily able to call my son...easily, and at 32 years old, I would trade my life for his, without hesitation........
I ask for your prayers...just your prayers please, no more, and no less.
My heart tells me he WILL beat the odds, he WILL be my grandson's dad for a long time to come, he WILL be my daughter's best protector AND provider, for a long tome to come
This little family has been deprived of God's love, and compassion, because of something I HAVE DONE, or NOT DONE...why are they being punished so??
My wife Sandie doesn't know yet, Jaxon is too young to understand, but, he knows that something is wrong..he's that intuitive...
He asks for your prayers as well......
I ask this of you.......I'm so very empty, I write this with tears, something coming from a guy that's faced, and experienced death first hand, and have been able to prevent it for others....
I'm shaking terribly, this is kinda hard, it's much to ask of you.......
Just got a call from my daughter, whom, along with the rest of us, have been holding a sort of "hurrah" vigil, at my son in law's bedside at Toronto Western General, 24 hours a day, a family member is taking turns being with Shawn, who, just a couple, or 3 weeks ago, shared the wonderful beach wedding of our oldest son, in Mexico..it was like a paradise of emotions and relaxation come true...all at the same time, all for the right reasons, all the family, and some very close friends attending.
It was the high, that I thought we'd never really have to come down from......it was that nice, it was that special.
Last week, Shawn (Jaxon's dad) lapsed into a brain induced emergency lift from Bowmanville, where they live, to Toronto...apparently THE hospital that knows what to do with these "demons" (as Shawn expresses it), which are un-affectionately know as Cavernomas
http://brainavm.oci.utoronto.ca/malformations/Cavernomas_index.htm
We truly thought that our grandson Jaxon, inherited the genome, from his dad, and that it would help explain some of his shortfalls in development, though, it would seems, with fingers crossed, Jaxon is just one of those kids that WON'T walk before he's 2 years old, but weekly therapy has made him a different little kid, a pretty amazing and capable little boy, with a vocabulary seemingly beyond some adults...he does have chromosome deficiencies, that WERE indeed passed down by both his parents, Shawn, and my daughter Nikki, so, it seems we need to wait, and work hard!!
Nikki called a few minutes ago...she was shaking right through the phone, when she said to please be prepared to bring Jaxon to see his dad, on a moments notice, as early as tomorrow morning, if current conditions continue to deteriorate....after 2 MRI's and emergency consults, it has been determined, that a sudden cavernoma had developed, in the last 2 weeks, at the base of his brain, behind the spinal cord, right where the cord attaches to the brain, and it needed to be removed, as it has refused to stop bleeding, and putting massive pressure on this part of his brain. has caused him a delusional state, eyes closed, even a whisper tormenting him like smashing cymbals.
They've tried all the non-radical and non-invasive treatments...nothing is working...it's going to be a life threatening emergency anywhere between tonite, and wednesday, when Shawn's be scheduled for an operation, that could end his life, literally......only 6 out of 51 such procedure have been successful..anywhere.
Nikki, between sobs, asked that we be prepared to bring Jaxon to see his dad, on a moment's notice, to perhaps say goodbye, and "I LOVE YOU" one last time, which I refuse to believe, and accept.
Shawn is the kind of dad, that ANY KID, would be proud to have as a dad, and I'm proud of his achievments, and his grit determination, and he's the kind of young man, that I'm easily able to call my son...easily, and at 32 years old, I would trade my life for his, without hesitation........
I ask for your prayers...just your prayers please, no more, and no less.
My heart tells me he WILL beat the odds, he WILL be my grandson's dad for a long time to come, he WILL be my daughter's best protector AND provider, for a long tome to come
This little family has been deprived of God's love, and compassion, because of something I HAVE DONE, or NOT DONE...why are they being punished so??
My wife Sandie doesn't know yet, Jaxon is too young to understand, but, he knows that something is wrong..he's that intuitive...
He asks for your prayers as well......
